Question: What Can Parents Do When TTTS Impacts Their Twins?
Twin-to-Twin Transfusion Sydrome is a disorder that impacts about ten percent of monozygotic (identical) twin pregnancies. Find more answers to Frequently Asked Questions About TTTS.
Answer: First, contact the TTTS Foundation for advice and support. It will be extremely reassuring to hear from families who have survived TTTS. In addition, the foundation can provide medical advice as your pregnancy progresses. The foundation offers a checklist for coping with the condition and preparing a plan of action, including suggestions like:
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- Create a medical plan of action based on educational materials provided by the foundation.
- Consult with a representative regarding treatment options, physician referrals and the benefits of diet and bed rest.
- Network with other families.
- Get a second opinion from specialists.
- Research the Internet for further information.
- Obtain approval for treatment options from your insurance company.
- Monitor your situation closely with weekly ultrasounds.
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Got a question that's not answered here? Email me at multiples.guide@about.com.
